Seth Carey's mom posted a short comment (reproduced below) on the short piece I ran about Seth Carey a little under a year ago. Seth, who suffered from ALS, used a computer and voice synthesis to communicate, and authored an excellent piece on NPR about his experiences, by turns tragic and extremely funny. Seth died last weekend.
Posted by johndan at August 23, 2005 10:49 AM | TrackBackSeth was certain of the words he wished to use, determined enough to use the letter-by-letter approach to achieve his ends.
I'm his mother, and worked with him on the editing of his piece. I would change a word at my peril--it was either HIS words or NO words.
Seth died Friday evening, August 19, 2005, his computer propped up in front of him, communicating until the end.